J-Pouch surgery in one week!! EEeekk!!

I knew these three weeks would fly by and they are. Only one week now until Jpouch day.  I woke up with terrible pain in my bum today and had a lot of blood and mucous to discharge.  Once this was dealt with I was fine and enjoyed a lazy day.  I have completed my pink baby blanket, so that was very happily ticked off the list.  I have now started a project for me :) I am crocheting myself a cushion to take into hospital, I thought it would be a nice thing to have to cuddle and cheer me up.

I have been busy chatting to my friends on the Colitis  Facebook page today, its great how supportive people are.  You always come away feeling that there are people that really understand how you feel.  You also get the information you really want to hear and appreciate.

I have been slowly sorting my little flat out, as I know I wont be cleaning for a while! one of the perks.  I am getting ready practically, physically, mentally, emotionally, spiritually.  Haha! No wonder I'm tired.  I feel I'm in a good place though, I am positive and upbeat and can't wait to be rid of this last bit of disease.  I'm sure I will weep when my doctor first declares me disease free.  What a journey...oh! I could officially be an X Factor contestant now...its one of the requirements.  The ability to sing is way down on the list but if you have  been on a journey your in! haha!

I am officially rambling now.  Hope your all well.

L x

Surgery in two weeks

This time in two weeks I will probably be in a recovery bed, after having my rectum removed, j-pouch and loop illeostomy constructed. Wow!!! that's major!  I got the call a week ago and I am feeling a mixture of emotions ranging from, nervous, excited, scared, happy,annoyed,angry,sad,overwhelmed.  Mainly I am nervous, but I am trying to be courageous and keep positive      Worrying will not change the outcome only use up my precious energy, so I am trying to give up negativity and think about all the positive things.  Like how for the first time in years I will be able to say I'm DISEASE FREE!!!! How good does that sound.

Ultimately I have made an informed decision that I am happy with and that is the most important thing.  I am well aware of the complications but to me its worth a go...I could be one of the lucky ones and this time next year could be writing about how my j pouch is working out for me...and telling you all the joys of butt burn!!! haha...that would be an interesting read.

I really want it too work, but if it doesn't I would live a content life with a stoma, in fact that is my main reason for being so upset.  This may seem ridiculous to some people but I will mourn my stoma going, I love Winnie completely..she has totally saved my life and given me back ME!!! Lets hope this new stoma behaves just as lovely as Winnie has...a new name will be revealed when I have my new stoma :) yes people I'm a little mad, but it keeps me smiling.

I hope you are all doing well.

L x

Hello World :)

A big hello and welcome to UK, USA, Canada, Australia, Germany, Spain and the Netherlands!!! It seems UC is determined on world domination, but it’s nice to see people from all over the world checking my blog. I hope your enjoying the read and if there are any topics you would like me to cover or any questions you have, just ask. 


 Wishing you all a very happy and disease free day x

Itis

A few weeks after my operation to remove my completely inadequate colon, my brother asked me if I was in any pain!  Bless him, I don’t think he was quite prepared or ever thought he’d hear me say very sarcastically.  “Oh yeah, apart from my rectum throbbing away at me!”  It seems if a disease or illness has got an ‘itis’ at the end of it, my body just can’t help it’s self.  So it was great when they said you have Proctitis, very typical of UC sufferers.  How wonderful, not only was my colon inflamed but my rectum also.  This led me to shock another unsuspecting person, with a remark to my surgeon just before I was being discharged home.  “I can’t wait for you to get this stupid rectum out of me!”  With a quick disbelieving look at me as if to say, did she really just say that, he then smiled.  To look at me you would never assume that this would be my reality, let alone flow out of my mouth so easily.  It’s like I’ve just said the most normal thing.   Luckily for me I do not get easily embarrassed.  I’m embarrassed by things like singing on karaoke not that I’ve done that in years, but I’m so used to pulling down my knickers for some doctor to shove a camera to infinity and beyond! I don’t bat a pethidined eyelid.   There is light at the end of that inflamed tunnel, I will soon have my next operation to remove that red rectum.  Although ironically being in stirrups for so long during my first op left me with bursitis!